Natalie (right) and her younger sister, Jessica
on Natalie's 10th birthday.
November 2009
Natalie is a happy camper, enjoying life and spreading happiness to others. Although Rett Syndrome has robbed her abilities to walk, talk, feed herself or simply take care of herself, she is continually smiling and laughing and it is definitely infectious. No matter how rough our day is, one look at her smiling and laughing changes our mood every single time.
Although Natalie remains acutely petite we are happy and relieved that she is gaining the necessary weight to be relatively healthy and thus eliminate the need for a feeding tube to be put in place. As she grows, we are concerned about safely transporting her, especially carrying her up and down the stairs. Thanks to the Shannon Daley Memorial Fund, when the time comes, we will be able to install the necessary equipment for us to safely transport Natalie up and down the stairs. The challenges ahead for Natalie and our family are great and many. But the Organization has definitely impacted our lives in lessening the difficulties that lie ahead.
Prior to being a recipient of the Fund, our family was paralyzed as to how to live our lives and not knowing how to handle the difficult financial situations ahead of us. But thanks to the Shannon Daley Memorial Fund, we are certain that Natalie will receive the prompt and necessary care and attention she needs to remain healthy and happy long into her childhood and adult years. The Organization has lifted our spirits, given us comfort and hope in knowing that no matter what challenging situations lie ahead, Natalie will be well cared for. We know that the day is coming soon where we will need to wisely draw on the financial gift given to us for Natalie. But knowing that so many people have contributed to ease the pain and strain of our daily life comforts us and makes us proud and grateful that we're a part of the Shannon Daley Memorial Fund Family.
The Hong Family
