Sydney Taborelli Update

Sydney Taborelli Update

Sydney had a trach put in at 4 months and is vent dependent. After leaving CHOP on June 16,2009 (224 days) She has done amazing. Her right lung is still very small but it does function at some level. Her left lung is almost full size and is very strong. Since...
Sydney Taborelli Update

Sydney Taborelli Update

January 2014 Sydney turned 5 this past November. This was a very emotional birthday for mom since we were told she would not survive birth! Not only is Sydney surviving, she has done amazingly well. She is no longer taking any medications on a regular basis, the...
Joey Delli Santi Update

Joey Delli Santi Update

FEB 2011 Joey is continuing to amaze all of us with his recent growth. Thanks to the help from the Shannon Daley Fund we are able to get Joey the help he desperately needed with speech and feeding and although he is still having some struggles his achievements are...
Jonathan Rojas Update

Jonathan Rojas Update

February 2014 Since the fundraiser last year, Jonathan had a very a tough early spring in 2013.  Jonathan was hospitalized with pneumonia for three days.  This was his first and longest hospitalization yet, but we know it will unfortunately not be his last.  Since...

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